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  • Workshop Topics

    Workshop Topics

    ALS Overlap Syndromes

    • Workshop 6.1 – Friday, July 8, 15:30 – 17:00

    Janice Robertson, University of Toronto

    WS 6.1.1 Genetic Aspects of ALS Overlap Syndromes

    15:30 – 16:15

    Maria Carmela Tartaglia, Centre for Research in Neurodegenerative Diseases

    WS 6.1.2 Clinical Aspects of ALS Overlap Syndromes

    16:15 – 17:00

    Approach to Muscular Dystrophies

    • Workshop 5.1 – Friday, July 8, 13:30 – 15:00

    WS 5.1.1 – The Clinicians Approach to Muscular Dystrophies

    Volker Straub, Newcastle University

    LGMDs

    13:30 – 14:15

    Carsten G. Bonnemann, National Institute of Neurological Disorders and Stroke/NIH Porter Neuroscience Research Center

    Congenital Muscular Dystrophies

    14:15 – 15:00

     

    Autoantibodies in Neuromuscular Disease

    • Workshop 7.1 – Saturday, July 9, 13:30 – 15:00

    Luis Querol, Hospital Sant Pau. Universitat Autònoma Barcelona

    WS 7.1.1 IgG4 Autoantibodies Related to Neuromuscular Diseases: Therapeutic Implications

    13:30 – 14:15

    Andrew Mammen, National Institutes of Health

    WS 7.1.2 Is It All About the Antibodies

    14:15 – 15:00

    Bioinformatics and Clinical Research

    • Workshop 4.1 – Thursday, July 7, 15:30 – 17:00

    Alexander Sherman, Massachusetts General Hospital

    WS 4.1.1 Technology Platforms for Clinical Research

    15:30 – 16:15

    Jon Katz, California Pacific Medical Center

    WS 4.1.2 Using the Electronic Medical Record for Research

    16:15 – 17:00

    Challenges in Design of Investigator-Initiated Research

    • Workshop 3.1 – Thursday, July 7, 13:30 – 15:00

    Richard Barohn, University of Kansas Medical Center

    WS 3.1.1 Challenges for Investigator Initiated Trials and for Conducting Multicenter Trials

    13:30 – 14:15

    Richard Barohn, University of Kansas Medical Center

    WS 3.1.2 Transatlantic Challenges

    14:15 – 15:00

    Controversies Over Large Nerve Biopsy

    • Workshop 4.2 – Thursday, July 7, 15:30 – 17:00

    Anthony Arnold Amato, Brigham and Women’s Hospital

    WS 4.2.1 Nerve Biopsy Are Rarely Needed

    15:30 – 16:15

    P. James Dyck, Mayo Clinic

    WS 4.2.2 It Is Valuable

    16:15 – 17:00

    Cramps in Neuromuscular Disease

    • Workshop 6.2 – Friday, July 8, 15:30 – 17:00

    Hans D. Katzberg, University of Toronto

    WS 6.2.1 Treatment of Muscle Cramps

    15:30 – 16:15

    Nicholas Silvestri, University at Buffalo School of Medicine and Biomedical

    WS 6.2.2 Assessment of Patients with Muscle Cramps

    16:15 – 17:00

    Diabetic Neuropathy

    • Workshop 6.3 – Friday, July 8, 15:30 – 17:00

    James Russell, University of Maryland School of Medicine

    WS 6.3.1 Epidemiology and Pathophysiology of Diabetic Neuropathy

    15:30 – 16:15

    Vera Bril, University of Toronto

    WS 6.3.2 Treatment of Diabetic Neuropathy

    16:15 – 17:00

    Diagnosis and Treatment of Diabetic Neuropathy

    • Workshop 5.3 – Friday, July 8, 15:30 – 17:00

    Bruce Perkins, Mount Sinai Hospital

    WS 5.3.1 Diagnosis of DSP

    13:30 – 14:15

    Evan Lewis, University of Toronto

    WS 5.3.2 Omega 3 Oil & Results in the Study

    14:15 – 15:00

    Diagnosis and Treatment of Myotonic Dystrophy

    • Workshop 3.2 – Thursday, July 7, 13:30 – 15:00

    Charles Thornton, University of Rochester Medical Center, School of Medicine and Dentistry

    WS 3.2.1 How to Treat Myotonic Dystrophy

    13:30 – 14:15

    Richard T. Moxley, III, University of Rochester Medical Center

    WS 3.2.2 Current Knowledge About Myotonic Dystrophy

    14:15 – 15:00

    Emerging Concepts in the Pathology and Clinical Management of Degenerative Cervical Myelopathy (DCM)

    • Workshop 2.1 – Wednesday, July 6, 15:30 – 17:00

    Panel Discussion

    16:30 – 17:00

    Michael G. Fehlings, University of Toronto

    WS 2.1.1 Emerging Concepts in the Pathobiology of Degenerative Cervical Myelopathy, Epidemiology and Clinical Presentation

    15:30 – 15:45

    Anthony Burns, University Health Network – Toronto Rehabilitation Institute

    WS 2.1.2 Clinical Implications, Outcomes and Rehabilitation Pathways

    15:45 – 16:00

    Sukhvinder Kalsi-Ryan, University Health Network

    WS 2.1.3 Understanding Disease Severity Through Novel Surrogate Measurement Approaches in NTSCI

    16:00 – 16:15

    Julien Cohen-Adad, Ecole Polytechnique, Université de Montréal

    WS 2.1.4 Advanced Techniques in Imaging Specific to Degenerative Myelopathy

    16:15 – 16:30

    Evaluation of Variants of Unknown Significance

    • Workshop 7.2 – Saturday, July 9, 13:30 – 15:00

    Mary Reilly, National Hospital for Neurology and Neurosurgery and ION

    WS 7.2.1 Nerve

    13:30 – 14:15

    Raveen Basran, The Hospital for Sick Children (SickKids)

    WS 7.2.2 Muscle

    14:15 – 15:00

    Exercise Therapy for Metabolic Myopathies

    • Workshop 8.1 – Saturday, July 9, 15:30 – 17:00

    Ronni Haller, University of Texas Southwestern Medical School

    WS 8.1.1 Exercise Therapy in Mitochondrial Disorders

    15:30 – 16:15

    John Vissing, Rigshospitalet, University of Copenhagen

    WS 8.1.2 Exercise Training and Pathophysiology of Exercise in Metabolic Myopathies

    16:15 – 17:00

    Genetics of Hereditary Polyneuropathy

    • Workshop 4.3 – Thursday, July 7, 13:30 – 15:00

    Stephan Züchner, University of Miami Miller School of Medicine

    WS 4.3.1 Overview of Genetics of Hereditary Polyneuropathy

    15:30 – 16:15

    Mario Saporta, University of Miami

    WS 4.3.2 Cellular Reprogramming and Inherited Peripheral Neuropathies: Perspectives and Challenges

    16:15 – 17:00

    How To Do Investigator-Initiated Trials; PCORI

    • Workshop 8.2 – Saturday, July 9, 15:30 – 17:00

    Richard Barohn, University of Kansas Medical Center

    WS 8.2.1 Why Patient-Centered Outcomes Research?

    15:30 – 16:15

    Richard BarohnUniversity of Kansas Medical Center

    WS 8.2.2 Investigator-Initiated Clinical Trials

    16:15 – 17:00

    Imaging of Muscle

    • Workshop 1.1 – Wednesday, July 6, 13:30 – 15:00

    Carsten G. Bonnemann, National Institute of Neurological Disorders and Stroke/NIH Porter Neuroscience Research Center

    WS 1.1.1 Muscle Ultrasound

    13:30 – 14:15

    Volker Straub, Newcastle University

    WS 1.1.2 The Application of MRI in Muscle Disease

    14:15 – 15:00

    Inclusion Body Myopathy

    • Workshop 7.3 – Saturday, July 9, 13:30 – 15:00

    Mazen Dimachkie, University of Kansas Medical Center

    WS 7.3.1 General Treatment Approaches

    13:30 – 14:15

    Anthony Arnold Amato, Brigham and Women’s Hospital

    WS 7.3.2 Ongoing Developments in IBM

    14:15 – 15:00

    Interesting Neuromuscular Cases

    • Workshop 5.2 – Friday, July 8, 13:30 – 15:00

    WS 5.2.1 – Interesting Neuromuscular Cases moderated by Dr. Katzberg & Dr. Izenberg

    Hans D. Katzberg, University of Toronto

    Aaron Izenberg, University of Toronto

    Management of ALS Patients

    • Workshop 1.2 – Wednesday, July 6, 13:30 – 15:00

    Stacy Rudnicki, Cytokinetics

    WS 1.2.1 Symptomatic Treatment of ALS

    13:30 – 14:15

    Christen Shoesmith, London Health Sciences Centre University Hospital

    WS 1.2.2 End of Life Issues in ALS

    14:15 – 15:00

    Metabolic Myopathy

    • Workshop 1.3 – Wednesday, July 6, 13:30 – 15:00

    Mark Tarnopolsky, McMaster University

    WS 1.3.1 Evaluation and Treatment of Pompe Disease

    13:30 – 14:15

    John Vissing, Rigshospitalet, University of Copenhagen

    WS 1.3.2 Dietary and Other Therapies in Muscle Glycogenoses and Disorders of Muscle Lipid Oxidation

    14:15 – 15:00

    Metabolic Neuropathies

    • Workshop 8.3 – Saturday, July 9, 15:30 – 17:00

    A. Gordon Smith, University of Utah

    WS 8.3.1 Neuropathy in Pre-Diabetes & The Metabolic Syndrome

    15:30 – 16:15

    Mamatha Pasnoor, The University of Kansas Medical Center

    WS 8.3.2 Neuropathies in Systemic Disease

    16:15 – 17:00

    Modern Concepts in Genetics

    • Workshop 3.3 – Thursday, July 7, 13:30 – 15:00

    Grace Yoon, Hospital for Sick Children (SickKids)

    WS 3.3.1 What is New in Genetics

    13:30 – 14:15

    Kevin Flanigan, Nationwide Children’s Hospital

    WS 3.3.2 TBC

    14:15 – 14:00

    Modern Concepts in Spinal Muscular Atrophy

    • Workshop 7.4 – Saturday, July 9, 13:30 – 15:00

    Susan Iannaccone, University of Texas Southwestern Medical Center

    WS 7.4.1 SMA Today

    13:30 – 14:15

    John Kissel, The Ohio State University Wexner Medical Center

    WS 7.4.2 Update on SMA

    14:15 – 15:00

    MRI Studies in Peripheral Nerve Disease

    • Workshop 2.2 – Wednesday, July 6, 15:30 – 17:00

    Jennifer Kollmer, University of Heidelberg

    WS 2.2.1 Novel Processing Methods for Peripheral Nerve Imaging

    15:30 – 16:15

    Ali Naraghi, Toronto Western Hospital, University Health Network

    WS 2.2.2 Challenges in MRI Studies of Peripheral Nerves

    16:15 – 17:00

    Neuromuscular Databases

    • Workshop 1.4 – Wednesday, July 6, 13:30 – 15:00

    Lawrence Korngut, University of Calgary, Clinical Neurosciences

    WS 1.4.1 Neuromuscular Databases

    13:30 – 14:15

    TBC

    WS 1.4.2 Treat NMD

    14:15 – 15:00

    Neuropathic Pain

    • Workshop 5.4 – Friday, July 8, 13:30 – 15:00

    John D. England, LSUHSC School of Medicine

    WS 5.4.1 The Role of Guidelines in Decisions on Treatment

    13:30 – 14:15

    Jaya Trivedi, UT Southwestern Medical Center

    WS 5.4.2 Update on Treatment of Neuropathic Pain

    14:15 – 15:00

    Outcome Measures in Inflammatory Neuropathy

    • Workshop 4.4 – Thursday, July 7, 15:30 – 17:00

    Ingemar Merkies, Academic Hospital Maastricht

    WS 4.1.1 What the Perinoms Study Taught Us

    15:30 – 16:15

    Jean-Marc Léger, CHU Pitié Salpêtrière

    WS 4.4.2 How We Should Assess Inflammatory

    16:15 – 17:00

    Outcome Measures in Neuromuscular Disorders

    • Workshop 8.4 – Saturday, July 9, 15:30 – 17:00

    Linda Lowes, Nationwide Children’s Hospital

    WS 8.4.1 Best Outcome Measures to Use for NM Patients/strong>

    15:30 – 16:15

    Craig McDonald, Center for Healthcare Policy and Research, UC Davis Children’s Hospital

    WS 8.4.2 Outcome Measures in Muscular Dystrophy

    16:15 – 17:00

    Outcome Scales in Myasthenia Gravis

    • Workshop 5.5 – Friday, July 8, 13:30 – 15:00

    Carolina Barnett Tapia, University of Toronto

    WS 5.5.1 Myasthenia Gravis Impairment Index

    13:30 – 14:15

    Ted Burns, University of Virginia School of Medicine

    WS 5.5.2 Review of Current MG Scales

    14:15 – 15:00

    Outcomes in Hereditary Neuropathy

    • Workshop 2.3 – Wednesday, July 6, 15:30 – 17:00

    Mary Reilly, National Hospital for Neurology and Neurosurgery and ION

    WS 2.3.1 Outcomes in CMT

    15:30 – 16:15

    Michael Shy, University of Iowa

    WS 2.3.2 Monitoring Hereditary Neuropathies in Clinical Trials

    16:15 – 17:00

    Peripheral Nerve Tumors

    • Workshop 6.4 – Friday, July 8, 15:30 – 17:00

    Wolfgang Grisold, Vienna Hospital Association

    WS 6.4.1 Lymphoma and Other Peripheral Nerve Tumors

    15:30 – 16:15

    Gelareh Zadeh, University Health Network

    WS 6.4.2 Neurofibromatosis 1 and Malignant Transformation of Peripheral Nerve Sheath Tumors

    16:15 – 17:00

    Primer for Genetic Testing

    • Workshop 4.5 – Thursday, July 7, 15:30 – 17:00

    Mary Reilly, National Hospital for Neurology and Neurosurgery and ION

    WS 4.5.1 Evaluation of Variants of Unknown Significance

    15:30 – 16:15

    Livija Medne, The Children’s Hospital of Philadelphia

    WS 4.5.2 Clinical Whole Exome Sequencing

    16:15 – 16:25

    Kim Amburgey, Hospital for Sick Children

    WS 4.5.2 Gene Panels

    16:25 – 16:45

    Joint Discussion

    16:45 – 17:00

    Role of Skin Punch Biopsy

    • Workshop 2.4 – Wednesday, July 6, 15:30 – 17:00

    Eva Feldman,
    Nationwide Children’s Hospital

    15:30 – 16:15

    Michael James Polydefkis, Johns Hopkins Bayview Medical Center

    WS 2.4.2 Role of Skin Punch Biopsy As a Research Outcome Measure

    16:15 – 17:00

    Small Fibre Neuropathy

    • Workshop 3.4 – Thursday, July 7, 13:30 – 15:00

    David Adams, CHU Bicêtre, APHP, Univ Paris Sud, FILNEMUS

    WS 3.4.1 Amyloid Neuropathy as a Model of Small Fiber Neuropathy

    13:30 – 14:15

    Giuseppe Lauria, Fondazione I.R.C.C.S Istituto Neurologico Carlo Besta

    WS 3.4.2 Diagnosis of Small Fibre Neuropathy

    14:15 – 15:00

    Treatment of Muscular Dystrophy

    • Workshop 8.5 – Saturday, July 9, 15:30 – 17:00

    Kevin Flanigan, Nationwide Children’s Hospital

    WS 8.5.1 Gene-Directed Treatment of Muscular Dystrophy

    15:30 – 16:15

    Francesco Muntoni, UCL Institute of Child Health

    WS 8.5.2 Non-Gene Directed

    16:15 – 17:00

    Treatment of Myasthenia Gravis

    • Workshop 1.5 – Wednesday, July 6, 13:30 – 15:00

    Gil I. Wolfe, University at Buffalo/SUNY School of Medicine and Biomedical Sciences

    WS 1.5.1 General Treatment Approaches

    13:30 – 14:15

    Susan Iannaccone, University of Texas Southwestern Medical Center

    WS 1.5.2 Treatment of MG in the Paediatric Population

    14:15 – 15:00

    Ultrasound in Peripheral Nerve Disease, Lower Limb

    • Workshop 3.5 – Thursday, July 7, 13:30 – 15:00

    Francis O. Walker, Wake Forest Baptist Health Neurology

    WS 3.5.1 Practical Demonstration and Discussion

    13:30 – 15:00

    Ultrasound in Peripheral Nerve Disease, Upper Limb – with demonstrations

    • Workshop 2.5 – Wednesday, July 6, 15:30 – 17:00

    Francis O. Walker, Wake Forest Baptist Health Neurology

    WS 2.5.1 Practical Demonstration and Discussion

    15:30 – 17:00

    Ultrasound of Muscle and Nerve

    • Workshop 6.5 – Friday, July 8, 15:30 – 17:00

    Steven Shook, Cleveland Clinic

    WS 6.5.1 Neuromuscular Physicians Should Perform NM Ultrasound

    15:30 – 16:15

    Linda Probyn, University of Toronto

    WS 6.5.2 Radiologists Should Perform NM Ultrasound

    16:15 – 17:00

    Update on FSHD

    • Workshop 7.5 – Saturday, July 9, 13:30 – 15:00

    Rabi Tawil, University of Rochester Medical Center

    WS 7.5.1 Recent Concepts in FSHD

    13:30 – 14:15

    Jeffrey M. Statland, University of Kansas Medical Center

    WS 7.5.2 Clinical Presentation in FSHD

    14:15 – 15:00

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